Topic
The gene, the diagnosis we never got, and what living with it actually involves.
A plain-English breakdown of what AS is, why diagnosis takes so long, and what day-to-day management actually looks like — from someone still in the middle of figuring it out.
The clinical descriptions of AS are accurate and emotionally useless. Here's what a year of living with it actually taught me — the mental load, the relationship stuff, and what genuinely helped.
